I have been getting so much information about Lymphedema from Lymphedema@LISTSERV ACOR ORG, THE LYMPHEDEMA ONLINE SUPPORT GROUP, It was lucky for me I found them.

I had Breast Cancer Surgery Jan. 15, 2001 and I had nodes removed. I was told to be careful with my right arm, but no specifics were given to me. Such as, it would be a chronic condition and what the Lymphatic System is all about.

Lucky I found this group of people on the network and through them I realized I needed Complex Decongestive Therapy from therapists who were specially trained and who would teach you how to care for yourself for the rest of your life. The therapy, bandages and garments are all medically necessary, but most is not paid for by Medicare and some Insurance Companies.

I broke a nail and thought nothing of it. After I realized it was getting very red and was not healing, I called my surgeon and he ordered antibiotics and said nothing about therapy.

I am finally doing my best to learn to live with this, as I had this all during chemo and radiation. I can't tell you how many times nurses have tried to get my right arm with a needle.

Education of the Lymphatic System is something we should all know about. Yes, even Nurses and Doctors. I wish I knew then what I know now.

Again, I say, Educate, Educate, Educate. I don't think scaring the women or men who have had surgery where nodes are removed, would not listen, especially if they were told it would be chronic and serious.

Helen from Florida